Duchenne Muscular Dystrophy Newborn Screening, a Case Study for Examining Ethical and Legal Issues for Pilots for Emerging Disorders: Considerations and Recommendations

• Κύριοι συγγραφείς: Michele A. Lloyd-Puryear (Συγγραφέας), Thomas O. Crawford (Συγγραφέας), Amy Brower (Συγγραφέας), Kristin Stephenson (Συγγραφέας), Tracy Trotter (Συγγραφέας), Edward Goldman (Συγγραφέας), Aaron Goldenberg (Συγγραφέας), R. Rodney Howell (Συγγραφέας), Annie Kennedy (Συγγραφέας), Michael Watson (Συγγραφέας)
• Μορφή: Βιβλίο
• Έκδοση: MDPI AG, 2018-01-01T00:00:00Z.
• Θέματα: article
• Διαθέσιμο Online: Connect to this object online.

Duchenne muscular dystrophy (DMD/Duchenne) is one of the ten most severe and common pediatric genetic diseases and affects an estimated 1 in every 5000 male births. While Duchenne is a 100% fatal disease, the clinical community has demonstrated that immediate identification and early clinical interv...