Living with a genetic, undiagnosed or rare disease: A longitudinal journalling study through the COVID‐19 pandemic

• मुख्य लेखकों: Malia Byun (लेखक), Hollie Feller (लेखक), Monica Ferrie (लेखक), Stephanie Best (लेखक)
• स्वरूप: पुस्तक
• प्रकाशित: Wiley, 2022-10-01T00:00:00Z.
• विषय: article
• ऑनलाइन पहुंच: Connect to this object online.

Abstract Introduction COVID‐19 changed the way we lived with uncertainty from the outset as the pandemic impacted every aspect of our lives from well‐being, socializing to accessing healthcare. For people in vulnerable populations, such as those with genetic, undiagnosed and rare disorders, the expe...