Quality of Life in Children with Neurofibromatosis Type 1: Agreement between Parents and Patients, and the Role of Disease Severity and Visibility

• मुख्य लेखकों: Nicola Davide Cavallo (लेखक), Paola Maietta (लेखक), Silverio Perrotta (लेखक), Pasquale Moretta (लेखक), Marco Carotenuto (लेखक), Maria Esposito (लेखक), Gabriella Santangelo (लेखक), Claudia Santoro (लेखक)
• स्वरूप: पुस्तक
• प्रकाशित: MDPI AG, 2024-08-01T00:00:00Z.
• विषय: article
• ऑनलाइन पहुंच: Connect to this object online.

Background: Neurofibromatosis type 1 (NF1) is a genetic disorder that affects multiple systems in the body, often leading to physical disfigurements and a wide range of clinical symptoms. This study aims to investigate the relationship between NF1 severity and visibility and the quality of life (QoL...