Quality of Life in Children with Neurofibromatosis Type 1: Agreement between Parents and Patients, and the Role of Disease Severity and Visibility

• Main Authors: Nicola Davide Cavallo (Author), Paola Maietta (Author), Silverio Perrotta (Author), Pasquale Moretta (Author), Marco Carotenuto (Author), Maria Esposito (Author), Gabriella Santangelo (Author), Claudia Santoro (Author)
• Format: Book
• Published: MDPI AG, 2024-08-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: Neurofibromatosis type 1 (NF1) is a genetic disorder that affects multiple systems in the body, often leading to physical disfigurements and a wide range of clinical symptoms. This study aims to investigate the relationship between NF1 severity and visibility and the quality of life (QoL...