Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study

• Main Authors: Springer, Jason Michael (Author), Kermani, Tanaz A (Author), Sreih, Antoine (Author), Shaw, Dianne G (Author), Young, Kalen (Author), Burroughs, Cristina M (Author), Merkel, Peter A (Author)
• Format: Book
• Published: JMIR Publications, 2020-07-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

BackgroundUtilizing the traditional centers of excellence approach to conduct clinical trials involving rare diseases remains challenging. Patient-based registries have been shown to be both feasible and valid in several other diseases. ObjectiveThis report outlines the clinical characteristics of a...