Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation

• المؤلفون الرئيسيون: Cláudia de Freitas (مؤلف), Vanessa dos Reis (مؤلف), Susana Silva (مؤلف), Paula A. Videira (مؤلف), Eva Morava (مؤلف), Jaak Jaeken (مؤلف)
• التنسيق: كتاب
• منشور في: BMC, 2017-09-01T00:00:00Z.
• الموضوعات: article
• الوصول للمادة أونلاين: Connect to this object online.

Abstract Background Public and patient involvement in the design of people-centred care and research is vital for communities whose needs are underserved, as are people with rare diseases. Innovations devised collectively by patients, caregivers, professionals and other members of the public can fos...