Barriers to the Diagnosis, Care, and Management of Pediatric Patients With Ehlers-Danlos Syndrome in the United States: A Qualitative Analysis

Objectives: Ehlers-Danlos Syndromes (EDS) are a family of heritable connective tissue diseases. Primary practitioners are capable of diagnosing and managing EDS; however, few are knowledgeable and comfortable enough to see patients with EDS, resulting in delays in diagnosis and care. This study expl...

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Main Authors: William R. Black PhD (Author), Lora L. Black PhD (Author), Jordan T. Jones DO (Author)
Format: Book
Published: SAGE Publishing, 2023-11-01T00:00:00Z.
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3rd Floor Main Library

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Call Number: A1234.567
Copy 1 Available