Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study

BackgroundSocial media provides a potential avenue for genetic counselors to address gaps in access to reliable genetics information for rare disease communities. However, only limited research has examined patient and family attitudes toward engaging with genetic counselors through social media. Ob...

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Main Authors: Megan Yabumoto (Author), Emily Miller (Author), Anoushka Rao (Author), Holly K Tabor (Author), Kelly E Ormond (Author), Meghan C Halley (Author)
Format: Book
Published: JMIR Publications, 2022-12-01T00:00:00Z.
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3rd Floor Main Library

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Call Number: A1234.567
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