The patients' experiences of burden of neurofibromatosis: A qualitative study

• المؤلفون الرئيسيون: Samira Foji (مؤلف), Eesa Mohammadi (مؤلف), Akram Sanagoo (مؤلف), Leila Jouybari (مؤلف)
• التنسيق: كتاب
• منشور في: Wolters Kluwer Medknow Publications, 2021-01-01T00:00:00Z.
• الموضوعات: article
• الوصول للمادة أونلاين: Connect to this object online.

Background: Neurofibromatosis Type 1 (NF1) is a common autosomal disorder; the criteria for the diagnosis of NF1 includes café au lait spots, freckling, and Neurofibromas (NF). Skin symptoms have a major impact on patients' Quality of Life (QOL) but little is known about the burden of the dise...