The patients' experiences of burden of neurofibromatosis: A qualitative study

• Main Authors: Samira Foji (Author), Eesa Mohammadi (Author), Akram Sanagoo (Author), Leila Jouybari (Author)
• Format: Book
• Published: Wolters Kluwer Medknow Publications, 2021-01-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: Neurofibromatosis Type 1 (NF1) is a common autosomal disorder; the criteria for the diagnosis of NF1 includes café au lait spots, freckling, and Neurofibromas (NF). Skin symptoms have a major impact on patients' Quality of Life (QOL) but little is known about the burden of the dise...