Exploring barriers to sickle cell disease care in a lower-middle income country - A qualitative exploration of the Tharu perspective in rural Nepal

• Main Authors: Alice Q. Liu (Author), Natasha Benson (Author), Kevin E. Liang (Author), Maya Rosenkrantz (Author), Armaan K. Malhotra (Author), Miles Marchand (Author), Abhiram Cherukupalli (Author), James Taylor (Author), Samantha Y. Starkey (Author), Sophia Lee (Author), Michael Jay (Author), Videsh Kapoor (Author)
• Format: Book
• Published: Elsevier, 2023-07-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: The indigenous Tharu ethnic group inhabiting the Terai (lowland) region of Nepal has been shown to have a high prevalence of sickle cell disease (SCD); specifically, previous studies have found a prevalence of 9.3% for sickle cell trait in this group. The lack of knowledge about SCD in t...