The ethical challenges of diversifying genomic data: A qualitative evidence synthesis

• Main Authors: Faranak Hardcastle (Author), Kate Lyle (Author), Rachel Horton (Author), Gabrielle Samuel (Author), Susie Weller (Author), Lisa Ballard (Author), Rachel Thompson (Author), Luiz Valerio De Paula Trindade (Author), José David Gómez Urrego (Author), Daniel Kochin (Author), Tess Johnson (Author), Nechama Tatz-Wieder (Author), Elizabeth Redrup Hill (Author), Florence Robinson Adams (Author), Yoseph Eskandar (Author), Eli Harriss (Author), Krystal S. Tsosie (Author), Padraig Dixon (Author), Maxine Mackintosh (Author), Lyra Nightingale (Author), Anneke Lucassen (Author)
• Format: Book
• Published: Cambridge University Press, 2024-01-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

This article aims to explore the ethical issues arising from attempts to diversify genomic data and include individuals from underserved groups in studies exploring the relationship between genomics and health. We employed a qualitative synthesis design, combining data from three sources: 1) a rapid...