Addressing the challenges of cross‐jurisdictional data linkage between a national clinical quality registry and government‐held health data

• Main Authors: Nadine E. Andrew (Author), Vijaya Sundararajan (Author), Amanda G. Thrift (Author), Monique F. Kilkenny (Author), Judith Katzenellenbogen (Author), Felicity Flack (Author), Melina Gattellari (Author), James H. Boyd (Author), Phil Anderson (Author), Brenda Grabsch (Author), Natasha A. Lannin (Author), Trisha Johnston (Author), Ying Chen (Author), Dominique A. Cadilhac (Author)
• Format: Book
• Published: Elsevier, 2016-10-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Objective: To describe the challenges of obtaining state and nationally held data for linkage to a non‐government national clinical registry. Methods: We reviewed processes negotiated to achieve linkage between the Australian Stroke Clinical Registry (AuSCR), the National Death Index, and s...