Quality of life and wishes in duchenne muscular dystrophy: the perception of children and their parents - doi:10.5020/18061230.2009.p233

• المؤلفون الرئيسيون: Egmar Longo Araújo de Melo (مؤلف), Maria Teresa Moreno Valdés (مؤلف), Cruiff Emerson Pinto da Silva (مؤلف), Marta Badia Corbella (مؤلف), Benito Arias Martínez (مؤلف)
• التنسيق: كتاب
• منشور في: Universidade de Fortaleza, 2012-01-01T00:00:00Z.
• الموضوعات: article
• الوصول للمادة أونلاين: Connect to this object online.

Objective: To assess the agreement between children with Duchenne Muscular Dystrophy (DMD) and their parents regarding the perception of quality of life (QOL) and the wishes expressed by children. Methods: The study involved 14 patients (median age = 9.9 yearsold) followed up in Sarah Rehabilitation...