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Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

अन्य संस्करण दिखाएं (3)

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...

पूर्ण विवरण

में बचाया:
ग्रंथसूची विवरण
मुख्य लेखक: Pilo, Cinzia (auth)
अन्य लेखक: Benedan, Laura (auth), El Hachem, May (auth), Galeone, Carlotta (auth), Mariani, Paolo (auth), Tadini, Gianluca (auth)
स्वरूप: इलेक्ट्रोनिक पुस्तक अध्याय
भाषा:अंग्रेज़ी
प्रकाशित: Florence Firenze University Press 2021
श्रृंखला:Proceedings e report 132
विषय:
Social research & statistics
Epidermolysis Bullosa
Patient-centered approach
Quality of Life
Pseudo-Delphi
ऑनलाइन पहुंच:OAPEN Library: download the publication
OAPEN Library: description of the publication
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OAPEN Library: download the publication
OAPEN Library: description of the publication

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