Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

Show other versions (3)

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...

Full description

Saved in:
Bibliographic Details
Main Author: Pilo, Cinzia (auth)
Other Authors: Benedan, Laura (auth), El Hachem, May (auth), Galeone, Carlotta (auth), Mariani, Paolo (auth), Tadini, Gianluca (auth)
Format: Electronic Book Chapter
Language:English
Published: Florence Firenze University Press 2021
Series:Proceedings e report 132
Subjects:
Social research & statistics
Epidermolysis Bullosa
Patient-centered approach
Quality of Life
Pseudo-Delphi
Online Access:OAPEN Library: download the publication
OAPEN Library: description of the publication
Tags: Add Tag
No Tags, Be the first to tag this record!

Internet

OAPEN Library: download the publication
OAPEN Library: description of the publication

3rd Floor Main Library

Holdings details from 3rd Floor Main Library
Call Number: A1234.567
Copy 1 Available

Similar Items