Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life
Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...
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| Autor Principal: | |
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| Outros autores: | , , , , |
| Formato: | Electrónico Capítulo de libro |
| Idioma: | inglés |
| Publicado: |
Florence
Firenze University Press
2021
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| Series: | Proceedings e report
132 |
| Subjects: | |
| Acceso en liña: | OAPEN Library: download the publication OAPEN Library: description of the publication |
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