Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex by Britt A. E. Dhaenens, Sarah A. van Dijk, Laura Fertitta, Walter Taal, Pierre Wolkenstein, Rianne Oostenbrink

Connect to this object online.

The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation i... by Britt A. E. Dhaenens, Sarah A. van Dijk, Walter Taal, D. Christine Noordhoek, Anna Coffey, Stephen P. McKenna, Rianne Oostenbrink

Connect to this object online.

Optimizing expert and patient input in pediatric trial design: Lessons learned and recommendations from a collaboration between conect4children and European Patient‐CEntric ClinicA... by Britt A. E. Dhaenens, Fenna Mahler, Hannah Batchelor, Pamela Dicks, Segolene Gaillard, Begonya Nafria, Annette Kopp‐Schneider, Maria Alexandra Ribeiro, Matthias Schwab, Monika Sparber‐Sauer, Jonas Leubner, Saskia N. deWildt, Rianne Oostenbrink

Connect to this object online.