Engaging patients in identifying risk factors for ALS
While policy-driven discourses promote patient engagement in research, its practice is severely limited. Drawing on participant observations and interviews conducted in 2021, we describe a process of research collaboration with amyotrophic lateral sclerosis (ALS) patients and their relatives to modi...
Saved in:
| Main Authors: | , , , , |
|---|---|
| Format: | Book |
| Published: |
Elsevier,
2022-12-01T00:00:00Z.
|
| Subjects: | |
| Online Access: | Connect to this object online. |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|