Ethical Considerations for Equitable Access to Genomic Sequencing for Critically Ill Neonates in the United States

Rare diseases impact all socio-economic, geographic, and racial groups indiscriminately. Newborn screening (NBS) is an exemplary international public health initiative that identifies infants with rare conditions early in life to reduce morbidity and mortality. NBS theoretically promotes equity thro...

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Hoofdauteurs: Kristen P. Fishler (Auteur), Joshua C. Euteneuer (Auteur), Luca Brunelli (Auteur)
Formaat: Boek
Gepubliceerd in: MDPI AG, 2022-03-01T00:00:00Z.
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