Ethical Considerations for Equitable Access to Genomic Sequencing for Critically Ill Neonates in the United States

• Asıl Yazarlar: Kristen P. Fishler (Yazar), Joshua C. Euteneuer (Yazar), Luca Brunelli (Yazar)
• Materyal Türü: Kitap
• Baskı/Yayın Bilgisi: MDPI AG, 2022-03-01T00:00:00Z.
• Konular: article
• Online Erişim: Connect to this object online.

Rare diseases impact all socio-economic, geographic, and racial groups indiscriminately. Newborn screening (NBS) is an exemplary international public health initiative that identifies infants with rare conditions early in life to reduce morbidity and mortality. NBS theoretically promotes equity thro...