Quality of life and wishes in Duchenne Muscular Dystrophy: the perception of children and their parents

• Prif Awduron: Benito Arias Martínez (Awdur), Marta Badia Corbella (Awdur), Cruiff Emerson Pinto da Silva (Awdur), Egmar Longo Araújo de Melo (Awdur), Maria Teresa Moreno Valdés (Awdur)
• Fformat: Llyfr
• Cyhoeddwyd: Universidade de Fortaleza, 2009-12-01T00:00:00Z.
• Pynciau: article
• Mynediad Ar-lein: Connect to this object online.

Objective: To assess the agreement between children with Duchenne Muscular Dystrophy (DMD) and their parents regarding the perception of quality of life (QOL) and the wishes expressed by children. Methods: The study involved 14 patients (median age = 9.9 yearsold) followed up in Sarah Rehabilitation...