Quality of life and wishes in Duchenne Muscular Dystrophy: the perception of children and their parents

• Main Authors: Benito Arias Martínez (Author), Marta Badia Corbella (Author), Cruiff Emerson Pinto da Silva (Author), Egmar Longo Araújo de Melo (Author), Maria Teresa Moreno Valdés (Author)
• Format: Book
• Published: Universidade de Fortaleza, 2009-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Objective: To assess the agreement between children with Duchenne Muscular Dystrophy (DMD) and their parents regarding the perception of quality of life (QOL) and the wishes expressed by children. Methods: The study involved 14 patients (median age = 9.9 yearsold) followed up in Sarah Rehabilitation...