Assessing the quality of life in the families of patients with epidermolysis bullosa: The mothers as main caregivers

• Main Authors: Fatemeh Chogani, MD (Author), Mohammad Mahdi Parvizi, MD, MPH, PhD (Author), Dedee F. Murrell, MA, BMBCh, FAAD, MD, FACD, FRCP (Edin) (Author), Farhad Handjani, MD (Author)
• Format: Book
• Published: Wolters Kluwer, 2021-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: Epidermolysis bullosa (EB) is an uncommon group of inherited disorders characterized by skin blistering after friction or mechanical trauma. EB affects patients and their families physically, socially, and emotionally. Objective: This study aimed to assess the family quality of life of t...