Assessing the quality of life in the families of patients with epidermolysis bullosa: The mothers as main caregivers

• Main Authors: Fatemeh Chogani, MD (Author), Mohammad Mahdi Parvizi, MD, MPH, PhD (Author), Dedee F. Murrell, MA, BMBCh, FAAD, MD, FACD, FRCP (Edin) (Author), Farhad Handjani, MD (Author)
• Format: Bog
• Udgivet: Wolters Kluwer, 2021-12-01T00:00:00Z.
• Fag: article
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Background: Epidermolysis bullosa (EB) is an uncommon group of inherited disorders characterized by skin blistering after friction or mechanical trauma. EB affects patients and their families physically, socially, and emotionally. Objective: This study aimed to assess the family quality of life of t...