Assessing the quality of life in the families of patients with epidermolysis bullosa: The mothers as main caregivers

• Hoofdauteurs: Fatemeh Chogani, MD (Auteur), Mohammad Mahdi Parvizi, MD, MPH, PhD (Auteur), Dedee F. Murrell, MA, BMBCh, FAAD, MD, FACD, FRCP (Edin) (Auteur), Farhad Handjani, MD (Auteur)
• Formaat: Boek
• Gepubliceerd in: Wolters Kluwer, 2021-12-01T00:00:00Z.
• Onderwerpen: article
• Online toegang: Connect to this object online.

Background: Epidermolysis bullosa (EB) is an uncommon group of inherited disorders characterized by skin blistering after friction or mechanical trauma. EB affects patients and their families physically, socially, and emotionally. Objective: This study aimed to assess the family quality of life of t...