Assessing the quality of life in the families of patients with epidermolysis bullosa: The mothers as main caregivers

• 主要な著者: Fatemeh Chogani, MD (著者), Mohammad Mahdi Parvizi, MD, MPH, PhD (著者), Dedee F. Murrell, MA, BMBCh, FAAD, MD, FACD, FRCP (Edin) (著者), Farhad Handjani, MD (著者)
• フォーマット: 図書
• 出版事項: Wolters Kluwer, 2021-12-01T00:00:00Z.
• 主題: article
• オンライン･アクセス: Connect to this object online.

Background: Epidermolysis bullosa (EB) is an uncommon group of inherited disorders characterized by skin blistering after friction or mechanical trauma. EB affects patients and their families physically, socially, and emotionally. Objective: This study aimed to assess the family quality of life of t...