Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey

BackgroundRare diseases (RDs) affect millions of people worldwide, and these diseases can severely impact the health-related quality of life (HRQoL) of those affected. Despite this, there is a lack of research measuring HRQoL using the EQ-5D-5L, which is one of the most widely used generic preferenc...

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Autores principales: Richard Huan Xu (Autor), Shamay S M Ng (Autor), Nan Luo (Autor), Dong Dong (Autor), Shuyang Zhang (Autor)
Formato: Libro
Publicado: JMIR Publications, 2023-10-01T00:00:00Z.
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