Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey

• 主要な著者: Richard Huan Xu (著者), Shamay S M Ng (著者), Nan Luo (著者), Dong Dong (著者), Shuyang Zhang (著者)
• フォーマット: 図書
• 出版事項: JMIR Publications, 2023-10-01T00:00:00Z.
• 主題: article
• オンライン･アクセス: Connect to this object online.

BackgroundRare diseases (RDs) affect millions of people worldwide, and these diseases can severely impact the health-related quality of life (HRQoL) of those affected. Despite this, there is a lack of research measuring HRQoL using the EQ-5D-5L, which is one of the most widely used generic preferenc...