Health Problems in Individuals With PWS Are Associated With Lower Quality of Life for Their Parents: A Snapshot in the Brazilian Population

• Հիմնական հեղինակներ: Alexandre Slowetzky Amaro (Հեղինակ), Daniela Andrea Rubin (Հեղինակ), Maria Cristina Triguero Veloz Teixeira (Հեղինակ), Arcenio José Ferreira (Հեղինակ), Graciele Massoli Rodrigues (Հեղինակ), Luiz Renato Rodrigues Carreiro (Հեղինակ)
• Ձևաչափ: Գիրք
• Հրապարակվել է: Frontiers Media S.A., 2022-02-01T00:00:00Z.
• Խորագրեր: article
• Առցանց հասանելիություն: Connect to this object online.

Prader-Willi syndrome (PWS) is a complex genetic disorder requiring interdisciplinary team monitoring and intensive care by parents. So far there is little information on people with PWS in Brazil. Our aim was to describe health problems and treatments used by people with PWS in Brazil and their rel...