Health Problems in Individuals With PWS Are Associated With Lower Quality of Life for Their Parents: A Snapshot in the Brazilian Population

• Päätekijät: Alexandre Slowetzky Amaro (Tekijä), Daniela Andrea Rubin (Tekijä), Maria Cristina Triguero Veloz Teixeira (Tekijä), Arcenio José Ferreira (Tekijä), Graciele Massoli Rodrigues (Tekijä), Luiz Renato Rodrigues Carreiro (Tekijä)
• Aineistotyyppi: Kirja
• Julkaistu: Frontiers Media S.A., 2022-02-01T00:00:00Z.
• Aiheet: article
• Linkit: Connect to this object online.

Prader-Willi syndrome (PWS) is a complex genetic disorder requiring interdisciplinary team monitoring and intensive care by parents. So far there is little information on people with PWS in Brazil. Our aim was to describe health problems and treatments used by people with PWS in Brazil and their rel...