Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review

BackgroundData from electronic health records (EHRs) are increasingly used in the field of genetic research to further precision medicine initiatives. However, many of these efforts exclude individuals with intellectual disabilities, which often stem from genetic conditions. To include this importan...

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Main Authors: Raspa, Melissa (Author), Moultrie, Rebecca (Author), Wagner, Laura (Author), Edwards, Anne (Author), Andrews, Sara (Author), Frisch, Mary Katherine (Author), Turner-Brown, Lauren (Author), Wheeler, Anne (Author)
Formato: Livro
Publicado em: JMIR Publications, 2020-05-01T00:00:00Z.
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