Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review

• Main Authors: Raspa, Melissa (Author), Moultrie, Rebecca (Author), Wagner, Laura (Author), Edwards, Anne (Author), Andrews, Sara (Author), Frisch, Mary Katherine (Author), Turner-Brown, Lauren (Author), Wheeler, Anne (Author)
• Format: Book
• Published: JMIR Publications, 2020-05-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

BackgroundData from electronic health records (EHRs) are increasingly used in the field of genetic research to further precision medicine initiatives. However, many of these efforts exclude individuals with intellectual disabilities, which often stem from genetic conditions. To include this importan...