Inalienable data: Ethical imaginaries of de-identified health data ownership

• Main Authors: Francis McKay (Author), Darren Treanor (Author), Nina Hallowell (Author)
• פורמט: ספר
• יצא לאור: Elsevier, 2023-12-01T00:00:00Z.
• נושאים: article
• גישה מקוונת: Connect to this object online.

Many legal, ethical, and regulatory frameworks allow de-identified health data to be shared for research without patients' opt-in consent. However, there may be public concerns about this practice, as people may feel they should have some say in how such data is used. This paper introduces the...